Archives: Improvement

I did it!! I actually managed to go out on a Saturday night without a) running out of steam after half-an-hour, b) not being able to get out of bed the next morning and c) feeling too self-conscious about wearing my O2 while I was out.

It’s a big step for me, really, and I’m really happy this morning. It was K’s Dad’s 60th this week and the whole family (the 4 off-spring and relevent +1’s) headed out to Sam and Maxie’s, a new place in the “Hub” where the new business/hotel-type district of MK is going up.

If I’m honest, I’ve been fretting about it on and off all week, what with my somewhat unpredicatable blowers and anti-biotic reactions at the moment, because I really wanted to be there and share the night with the rest of the family. K and I have known each other for a long time, and I’ve known her family for most of our friendship, but it was also the first time I was joining up with a full family gathering as “one of them” and I really didn’t want to have to bail out because my chest was being beligerent
(sorry, Nick, but it is in the dictionary if you want to check…).

It’s probably going to sound funny to people who know me, but last night really did feel like a bit of a watershed moment for me – like I was being welcomed into the family. There was no fanfare or special treatment or anything like that, but just that feeling of comfort you get when you stop worrying about whether or not everyone is really happy that you’re there and accept that it really does appear that they can tolerate your company.

Of course, it was helped hugely by being able to bribe the twins round to my side my being a taxi, but you never get anywhere in life without the odd backhander, eh?

But I think most importantly for me last night, helped by feeling welcome and comfortable, was that I managed to get through the whole thing without worrying about how I was feeling. I seemed to have the perfect energy levels for the night. I didn’t arrive home exhausted, nor did I feel that I had to not do something because I wasn’t up to it.

I was about to say that I suppose that sitting in a restaurant having dinner isn’t too taxing, so I shouldn’t really make a fuss, but actually, on reflection, it shows how far I’ve come in my recovery since before Christmas that my mind is working like that. Back in November/December, the idea of spending 3 hours sat in a restaurant, oxygen or no oxygen would have been enough to send me to bed to sleep for a week – so it really is a big deal for me to have got through it.

It’s funny how these little victories often nearly go unnoticed and it’s one of the things I love about doing this blog. In the same way I said when I started out that I hoped writing it all down would encourage me to see the wood for the trees and not get bogged down in hard times, but remember to keep smiling, I think it helps me not to overlook the upsides which might otherwise get glossed over.

Whatever way you look at it, I’ve come a long way since the turn of the year – like any period in life it’s had it’s ups and downs, but it’s worth reminding myself that I’ve done some amazing things and I’m doing better than I perhaps would have hoped in terms of moving forward both physically and mentally.

A week in hospital for respite pre-show this week should also do me a lot of good and although I know I’m not going to like it much when I’m there, it’s been reassuring to have the knowledge of an impending stay to let me prepare for it, rather than the usual course of getting it hoisted on me when I’m at my lowest.

The next week can’t really go quick enough, but at least I’m on a high going into it, which should stand me in good stead for keeping my spirits up through it.

Have I mentioned in the last week or so how much IV’s annoy me? Methinks once or twice…

Yesterday was a really good day – I didn’t sleep very well, but I re-organised my drug schedule to get me out of bed at 8am instead of 6am, which meant I could get up and start my day immediately, rather than going back to bed after an hour when my drugs were done and sleeping till noon.

It also worked well because it let me take my catch-up sleep (that’s just me trying to avoid the wword “nap” really) straight after lunch, before my afternoon dose, rather than having to wait till after it and then sleeping too late into the afternoon, which in turn appeared to be disrupting my night-time sleep pattern.

Not only did it seem to work pretty well, the new schedule, but it also seemed to give me a lot more energy and get-up-and-go and as a result I had an enormously productive day, leathering through work on the new CF Talk, Laughter for Life and the Activ8 Show, all of which had been somewhat neglected over the previous week.

Having gone to bed tired and ready to sleep after my late dose last night, I was eagerly anticipating a good night’s sleep (which I got – YAY!) and another energy-filled, super-productive day. I was even starting to plan my to-do list for the day as I drifted off.

But high doses of wapping strength drugs will go and do odd things to your system. After a great night’s rest, I woke up not full of the bouncing, work-attacking energy with which I’d gone through Thursday, but with the apparent wakefulness of your average 3-toed Sloth, which saw me lumped on the sofa most of the morning working out how much of the to-do’s could be un-done for the day.

After lunch, I slept, again anticipating a post-snooze pick-up to revamp my day, but again seemed only to wake more tired than I had been when I went to sleep. Worse than that, though, was the fact that my brain saw fit to simply shut down and not operate for the rest of the day until about 9pm this evening.

I’ve thus spent almost all of the day/afternoon in a semi-comatose state on the sofa wondering where on earth all the energy and pizazz I discovered yesterday had gone.

It would appear that I’m back in the old give-and-take world of IV’s and energy which had me so frustrated in the run up to Christmas. As much as I want to be pushing myself forward and keeping ploughing on, I keep having to give in to my body and accept defeat on a day’s work.

If there were just some kind of indicator as to whether tomorrow was going to be better or worse, I think I could cope with it easier – it’s the apparent lottery of energy levels that’s really riling me at the moment.

I suppose I just have to look at it from the point of view that it makes each day more interesting and exciting because I never know what’s going to get thrown at me: perhaps there’ll be something new to spur me on tomorrow, or maybe I’ll be finding new depths of reserves to drag myself through the day. Who knows? Isn’t it fun?!

Today has been, frankly, a pretty rubbish day.

Yet again last night my drugs and brain conspired to keep me awake almost the whole way through the night,  letting me finally drift off for more than an hour just before my 6am alarm call for my morning IV’s, followed by my usually solid sleep-time of 7-11am being interrupted by phone calls, deliveries and other distractions.

So a bad start to a long day as it was, which put me in a less than fabulous mood for the rest of it, which in turn annoyed me because my cousin Katie was down from Brum to catch a show at the Theatre and we were planning on having a bit of a day of it.

As it was, I could hardly muster the energy to entertain, although we did have a good chat and a cracking Game of Life with K (which I won, natch…).  But I still had to collapse into bed mid-afternoon to catch up on sleeps.

My body was simply not keen to play ball today though and stubbornly refused to wake itself up from my nap, which dragged me further into struggles for general awake/happiness.

The thought of getting through an hour and a half’s work session was, I have to admit, less than appealing, so it came as some relief when Rheya phoned to pass a message from Suze to say that since most of my group weren’t in for tonight, it made more sense for me to stay at home, so I delivered Katie to the Theatre and sorted her tickets before heading straight back home.

No sooner was I back than my chest started playing silly buggers again and givingg me all sorts of grief – mostly muscle-related pain, I think, from where I’ve been sleeping and holding myself a little strangely due to the IV access in my shoulder.

Being both exhausted and in pain is never a great modd-enhancing combo, so I was getting spectacularly downbeat and po-faced when I discovered perhaps the funniest thing I’ve seen on TV in a long time.

Curled up in bed with K, we flicked onto Never Mind The Buzzcocks and I laughed so hard I’m sure the pain from my chest has migrated to my stomach.

I’ve really no idea who Donny Tourettes is – or even if I’ve got his name right – but he made for some of the most unintentionally hilarious TV viewing since You’ve Been Framed made people laugh.

Watching Bill Bailey and Simon Amstell (both newly minted personal heroes of mine) ripping into Donny’s bizarre attempts at either rebellion or humour, coupled with his own self-image of sex-god punk rockstar out to diss the world had me doubled over in laughter and nearly falling off the bed.

It goes to prove that no matter how lousy things get, I was right all along when I said that the only way to deal with the tough times is to smile through it.

God bless you, Buzzcocks.

Tuesdays are traditionally oone of those nothing days, aren’t they?  They’re not Monday, so there’s no real reason to hate them, but neither are they Friday, with the joy of an impending weekend, nor Sunday, with it’s laid back, pipe-and-slippers feel.

So it was a wonderful turn up for the books yesterday when we seemed to have a belated Christmas of good tidings all tumble into our laps over the course of a happy, exciting, smile-making morning, afternoon and evening.

First thing in the morning, we kicked off with a wonderful double-whammy for K where in the space of 30 minutes she discovered not only that she had she been accepted on her college course – a 12-month access to healthcare which will set her up to head to uni to study Speech Therapy next year – but also that she’s been granted an interview for a job which would fit both her and our needs perfectly.

Coming directly on top of that, I had a HUGELY productive morning working on the Laughter for Life show, getting to grips with a number of pressing issues.  Most unbelievably generous and fantastic for us was the agreement of Steve at Tin Racer, who do all the design work for CF Talk, to design the programmes for the night for free.  Not only that, but he also offered to talk to his contacts to see if we can get it printed for free, too!

After beavering away on all things funny for the morning, we then popped out to Mazda to test drive the Mazda 6 – a proper, grown-up car which I have to confess I’ve rather fallen in love with.  I’ve been looking to change my current car on the Motablilty scheme since November, when I realised that in order to stay mobile when I’m less well, it may be better for me to have an automatic gearbox, to take away some of the physical exertion of driving.  It now looks like we’ve found the right car – and may well be off to order it tomorrow!

On top of all of that, K then started her college course in the evening (cutting it fine on the admissions front, MK College…) and came through the evening unscathed and looking forward to what the next 12 months hold academically.

I spent the time she was in college hanging out with a friend who I haven’t spent a lot of time with for ages and we caught up.  Adding to the Super Tuesday feel, he was filling me in on his new relationship (early stages, but hey, it’s still a relationship) and I couldn’t have been happier for him.  I know he’s feeling a bit conflicted about it all at the moment (loooooong story…) but I think it’s fab and he should enjoy it!

Every now and again one of those days come along where everything just seems to go your way.  So often in life we can only remember those days when everything seems to go against you, so I’m determined to hold on to the memoryof my Super Tuesday and use it in future to blast away the cobwebs when I’m starting to doubt my productivity or the wisdom of things.

Everyone should have a Super Tuesday at some point, and when you do, make sure you lodge it in your memory and share the good news with all around you.  Nothing like a ray of sunshine through the snow to make people smile.

Believe me, I know how strange this sounds coming from someone who’s spent the last two months writing about the various different ups and downs in his live, but just now I’m finding it unbelievably hard to find the right words to describe just how happy I’m feeling.

This is one of those periods of life that just make you sit back and smile – to count your blessings and realise that the world is not really a big, evil place that intent on wearing you down, but rather that if you put yourself in the right position to be the master of your own destiny and you look at the world from the right perspective, things will sooner or later start to swing your way.

I can also appreciate how bizarre it might sound for someone who is currently waiting for someone else to die so that he can have a chance of a fresh, new tilt at life to even begin to decribe himself as the master of his own destiny.

But success or failure, good or bad, up or down is all a matter of perception.

Paul McKenna, in numerous published writings (not least Change Your Life in 7 Days, which I would recommend to anyone, even the most sceptical of self-help depreciators) cites the words of Thomas Edison when questioned as to how he felt after failing for the 700th time in his attempt to invent the electric light:

“I have not failed 700 times. I have not failed once. I have succeeded in proving that those 700 ways will not work. When I have eliminated all the ways that will not work, I will find the way that will work.”

Right now, in as much as these things matter to me, everything is going my way:

I’m back living at home in my lovely little flat with my girlfriend whom I’m very much in love with and I’m honoured to say is very much in love with me.

I’m working on 3 projects which not only motivate and excite me, but also give me aims, objectives and reasons to keep well.

My chest is behaving exactly as I expect it to.  It’s not ever going to fire on all cylinders again, but that’s why I’m on the transplant list.  All I can ask it to do now is support me as best it can until such time as God sees fit to call time on these knackered old blowers and give me a fresh set.

I’m surrounded by people whom I love and who love me back – my friends are fantastic and don’t ever make me feel bad for not being able to join in  things, nor complain when I pull out of things at the last minute; my family all go out of their way to do whatever I need of them, no matter how little or unreasonable; people I work with make huge allowances for what I can and can’t do and never bat an eyelid or make me feel like I’m stretching their patience (even when I know I must – I stretch my OWN patience with some of the last-minute turnarounds, it can’t be easy for others to deal with).

Every once in a while all the pieces in your life seem to align just so – like the planets and the sun, or the cogs of a machine – and for a moment life seems just right.  And it’s so, so, so important to seize that moment, to recognise it for what it is: fleeting perfection of it’s own kind which will last but a flicker, but if you see it and grasp it, it will last forever in the memory.

I’m under no illusions that this will continue unabated; I know there will be trouble ahead – harder times, darker times, more challenging and less fun times, but damned if I’m not going to enjoy the good stuff while it’s here.

Like the song says: while there’s moonlight and music and love and romance, I’ll be the one on the dance floor.

I’ve had a brilliant day today, taken up mostly with a mammoth 4-hour meeting with Suze and Rheya about the MKT show this April.

The show, which is going to be in aid of the Cystic Fibrosis Trust, will be something of a gala performance for the Activ8 Youth Theatre, with whom Suze and I have worked (on-and-off on my part) for the last 5-6 years.  We’ve never had the opportunity to start with such carte blanche as we’ve been given here, and it’s fantastic – if a little daunting.

The Youth Theatre have been lucky in the past if they secured a single performance date in a 12-month period, so to have this show coming so quickly off the back of the summer show is exciting in and of itself, but to have such free reign to make the most of our stage time is a fantastic opportunity for all the children and young people involved.

So far, we’re looking at doing devised pieces for the youngest three groups, and then a combination of devised, scripted and new-writing pieces with the oldest group – who have mostly been with us for a long time and will no doubt be raring to display the many facets of stage-craft they’ve had the chance to develop working with a practitioner as accomplished and, let’s face it, off-the-wall as Suze.

Today’s meeting was spent hammering out exactly what each group would be doing – allowing for the fact that the rehearsal process is sure to kick up a few new challenges and options on the way – and also going over a few storylines for some of the devised pieces which needed solidifying before we past them back to the groups to continue working.

The groups have already been working on some of the stuff that will be incorporated into the performance in the last term, but the ideas they’ve developed will all be picked up and run with over the course of the next 10 weeks leading up to the show.  The idea is that we’ll be using familiar material but probe deeper into it to make sure we’re challenging them to come up with something that will push them and make the most of the showcase they’ve been offered.

I’m most excited about the fact that I’m due to return to rehearsals on Wednesday and Suze has offered me the opportunity to write part of the show and to direct a separate section with some of the older group involved.  It’s been so long since I’ve directed anything from scratch that I’m REALLY looking forward to it and can’t wait to get going.

The section I’m working on is an amalgam of scenes from Hamlet and Tom Stoppard’s Rosencrantz and Guildenstern are dead – a show I’ve always wanted to direct in its entirety.

I have to confess I’ve been a little on the tired side after our enormous brain-storming/planning session, but I feel so jazzed at the thought of being part of this show.  It’s wonderfully exciting to be working with the groups towards something that will really show their families and, hopefully, the wider community, what they are capable of doing.

Tickets are available NOW from the Milton Keynes Theatre box office 0870 060 6652 (with a booking fee) or online here. (plug, plug)

In other news: my new BlackBerry arrived today, too!!  After all my to-ing and fro-ing with O2 (the phone company, not the oxygen people), I managed not only to secure a free upgrade to the BlackBerry, but also to upgrade my call plan to double the minutes (400) and ten times the texts (1,000) per month for the same money.  And I only wanted the phone….

Unfortunately, since it arrived I’ve been castigated by K after spending all morning and half the afternoon in a meeting for then getting so wrapped up in my new toy that I’ve hardly paid any attention to her all day. 

I’d like to make a witty-yet-cutting riposte to show her that she’s completely in the wrong and I’m smugly in the right as usual, but I really can’t defend myself on this one, so I’m going to slope off and use my apologetic face.

EMILY UPDATE: For those of you still keeping tabs on Em (of which I know there are tons) she’s still doing well.  She’s still on the vent for the moment, but her family say things are looking good for now.  Thanks to you all for your love, prayers and support – I know they’re greatly appreciated. 

I think I might have cracked it.  Not in a bad, going-to-need-to-replace-it kind of way, in an it’s-about-time-you-silly-arse kind of way.

First of all, big Happy New Year to one and all – hope you had a good night’s celebrations and woke up later on the 1st without too much of a fuzzy head and swirly stomach.  Being the paragon of virtue that I am, I was enjoyable tee-total (or is that tea-total) all night and felt super when I woke up.  So bleh to you! (I don’t know how you spell the noise you make when you stick your tongue out at someone…)

But most excitingly, I’ve managed to get through all of the weekend’s festivities and back into normal life with no kind of a chest-related hangover whatsoever – how brilliant is that?

Not only did I save up enough energy on the 31st to have a really good night with S&S and the big C at the Lodge, but I lasted the course of a day with my Godson and family yesterday too.

Sunday night was great fun – just the 5 of us chilling out, chatting, laughing and watching the Hootenanny on the telly.  I love the Hootenanny, mostly just because it has a totally brilliant name.  Hootenanny has to be one of the best words in the whole language.  And it is totally fitting for some kind of party!

Come midnight we all hugged and danced (some more energetically than others) and decided we were knackered and ran away to bed.

Monday was another cracking day of fun and frolics with my Godson, his Mum and Dad and bro.  We played Uno and I lost by a lot, we played Game of Life and I lost by a little less, then after our second meal of the day – don’t you just love those days when you have a huge roast dinner and then come back later in the afternoon to finish off the leftovers and clear out the fridge with some lovely crusty bread and pickles and cheese and other wonderful delights? – we played Game of Life again and I won.  I didn’t mean to, I sort of did it by accident.

The whole thing was interspersed with an hour’s break in the middle when the two Dad’s took the young’uns off for a walk around the lake and I laid on the bed with Neve strapped on resting myself up for the 2ns half of the day.  It worked brilliantly – just as I was beginning to flag, my mini-break, semi-nap set me up for the rest of the day perfectly.

The best part of the whole weekend, though, without a doubt (aside from all the great bits) was waking up this morning feel fresh, energised and ready to tackle the day.  Not a single sentence of moany-ness from my chest and not a moment of complaint throughout the day.

I’m so happy it’s really rather silly and I’m aware of how fragile it all can be, but I can’t think of a better way to start the New Year than to realise that I’ve worked out the limits of my ever-changing body.

I know I tend to push myself too hard and usually too fast, but it’s fantastic to know where I can push myself to and to be able to recognise when I need to stop, take a breath or three and stop myself being silly.

Those of you who’ve been with me from the start will know that this whole escapade began with me searching for an understanding of the boundaries that were newly rearranged around my ever-more-protesting blowers, and to finally find something of an answer, or at least a vague level of comprehension, feels wonderful.

So now it’s time to turn my attention to more long-term and practical goals, and see what I can’t achieve with my year before Harefield get on the phone to offer me my part-exchange.

Anyone got anything they need me to do that involves sitting at a desk and preferably being creative, you know where to find me.

For now, I’m off to get my 10 hours sleep to make sure tomorrow goes just as well.

Happy New Year everyone, bring on the next challenge!

Festive recovery is progressing well – I’ve had two complete days of doing very little-to-nothing and looking after myself and I’m feeling all the better for it.

I’ve got a voucher-splashing trip to Borders planned for the morning, under the guise of taking my Dad over to show him how fab it is, and I’ll be merrily spending my way through the delightful vouchers supplied by K’s big bro and troupe. (Happy now?;-).

I’m still not entirely firing on all cylinders, but I’m finding it much easier to get around at the moment – albeit always tied to an oxygen cylinder or concentrator – and I’m not nearly as breathless as I was yesterday or the day before, which goes to prove two things. 1) that doing plenty of physio and getting plenty of rest really works and 2) TOBI, the nebulised form of the Tobramycin anit-biotic, really does do it’s job spectacuarly well, as I only restarted it on Boxing day (it works on a month-on, month-off basis).

Also had an interesting conversation with O2 yesterday.  I’ve been thinking a lot about getting hold of a Blackberry phone/email device thingy, mostly because it’s a fair assumption that this year I’ll be spending a good deal more time in hospital and that being the case, it would be great to have access to my emails from my bed.  The hospital as it is doesn’t have workable or affordable internet access, so a Blackberry seems ideal.

What it would mean is that while I’m laid up with nothing much to do, not only can I carry on communicating with my friends without running up an insanely huge text message bill, but I can also carry on with most of the work I do for the Trust, which is handled largely through email with contributors, designers and the “bosses” there.

Now, I’ve seen a few really attractive deals on O2 for Blackberry Pearl phones and contracts to go with them, namely one which tell me that if you sign up to a £30+p/m voice contract and £10p/m Blackberry Tariff, you get the Pearl for free.

So I phoned and spoke to O2 customer services and told them that although I’m only 9 months into my current contract, I’d like to add the Blackberry Tariff and get the Pearl.  Fine, they said, that’ll be £220. 

Now, bearing in mind that the phone alone is advertised in Carphone Warehouse at the moment for £199, this didn’t seem like a fabulous offer.  I told them so.  They told me that since I’m not due an upgrade, there’s nothing they can do. 

I outlined my history with the company – loyal customer for over three years, no problems or complaints, no other issues – and suggested that perhaps, since I’m only 3 months away from the end of the contract, maybe they could budge a little on the price of the phone.  I didn’t say I wanted it free, just a little leeway on the £220.  But no, they don’t do it and no one there is authorised to.

So I thanked them politely and hung up, redialed and went through to the option on their phone menu saying “If you are less than happy”.  I outlined the situation again and got the same response – nothing they could do because I was outside the upgrade window.

At this point, having reiterated the fact that I’d been loyal for 4 years, never missed a payment, never raised a problem with them, never kicked up a fuss about anything, I let them know I was feeling like a mildly undervalued customer.

In fact, it had occurred to me whilst talking to them that it would be cheaper for me to go down to Carphone Warehouse, take out a new contract – on exactly the same terms as my current one – plus the Blackberry tariff, get the phone for free and pay out the remainder of my contract with them than it would be for me to get the Pearl through them.  I told them.

At this point he put me on hold and came back 5 minutes later telling me that having spoken to 2 different departments, the 2nd one told him that if I called them back on the 4th January, they would do the upgrade for me.  Just like that.

Interestingly, when I asked what department I needed to speak to when I called back, he told me it was the “Safe” department – the people you talk to when you say you want to cancel your contract.  So being a “valued” customer isn’t enough to get you benefits and deals as part of O2 – you really only matter when they think you’re going to defect to Vodafone or Orange.

Still, who am I to grumble, as of January I’ll be my own personal walking office – marvellous!

Today’s been a really good day for me and I’m really pleased with myself for it, too. 

Yesterday, apart from slumming it on the sofa trying to urge my chest pains to go away, I spent the afternoon writing another article for the Guardian’s Comment is Free site – this time about Transplantation.

Em and Em, the partners in crime behind Live Life Then Give Life (from whom you should all have bought a T-shirt, not to mention signed up to the Organ Donor Register), organised another big publicity push for Christmas, which I sadly missed out on because of all my recent email hiccups and account confusions.

So, in order to still be doing my part, I mentioned the campaign to the guy who’d contacted me about writing my previous article to see if he was interested.  He said he was, so I spent the afternoon writing up a general summary of the status of transplant in the country and the various different systems around the world.

What I’m most pleased about it that he particularly wanted to stir up a bit of debate about the subject and if you go and check out the article online (here), you’ll find a lively exchange in the comments section underneath, which is really good to see.  Except maybe for the comment about my hair…

After being in the study working all afternoon, my chest was protesting a little again so I stayed on the sofa watching a movie in the evening and headed to bed at a sensible time. 

Better than anything was the fact that I got myself comfortable (not always possible with chest pains) and slept solidly through until 11am this morning – 12 hours sleep being something I’ve not enjoyed for as long as I can remember.  It was blissful to wake up and discover I’d been out like a light all night.  And it’s really recharging, too.

What I’m most pleased with today, though, is that I’ve stayed true to my promise to chill for the next few days before Christmas and have done very little again today.  I’ve been massively helped by the fact that I’ve had friends round to see me most of the day, which is good for sitting on the sofa chatting and not having to move or do other things.

But I’ve also been really good at doing physio sessions and stopping myself from “popping out” or sitting in the study at the computer for too long, or at the table in the kitchen reading the paper – all of which have a tendency to put extra strain on my chest and induce pain here and there.

Fingers crossed, I’ll be able to carry my discipline over to tomorrow, when I’ve got a little more planned, but am hoping that when I’m not out of the house, I’ll either be in bed or on the sofa doing nothing at all.  And K’s back from her parents’ tomorrow afternoon, so she’ll be around to police me.

MUCH better day today, as I was sure it would be.  Well, semi-sure.

But my body’s been decidedly responsive and I’ve managed to pass through an entire day with remarkably high energy-levels and not very much in the way of breathless episodes and other nastiness.

I slept pretty well, which is always a good start, and didn’t lie in bed too long this morning, which is something I’m increasingly persuaded is a bad thing in terms of momentum for the day.

This afternoon I ran K over to an appointment in Northampton and used the spare time to visit Suze, my partner in crime from MKT, from where I’ve sadly been completely AWOL for the entire term.  It was good to hear that all the work they’ve been doing is going fabulously well and that plans for the show in April are really rolling along.

I’m desperate to get back there and get my creative juices flowing again.  The workshops really energise me – working with kids and young people is so inspiring because of the way they see things and tackle problems.

One of the things I always fall back on when I tell people how great it is doing what I do is how much we can learn from children.  The most important thing in a 6 year-old’s life is whatever they happen to be doing at that moment in time, and that’s absolutely the way that we should all live out lives.

The trouble is as we get older, other stresses and worries crowd in and take over the freedom and innocence we enjoy as children and everything becomes more complicated.  But working with the younger groups at MKT has really helped me keep in touch with the old adage of living every day – and moment – for what it is, not what it could, should or has been.

The older groups at MKT simply serve to drive me forward creatively.  There’s nothing so powerfully motivating than seeing a group of people you’ve worked with for a long time learning and growing and expanding their experiences and outlooks on life, and to be challenged in your beliefs and understanding of the things around you. 

They push me to better understand myself and my ideas and to make sense of what I’m trying to communicate, to them or an audience or anyone else.

And working with Suzanne has given me the opportunity to be involved in a whole load of things in a whole load of capacities that I never would have had chance to do were it not for her faith and trust in me and what I can (or can’t) do.

Needless to say, I miss it mightily and I’m yearning to go back.  What’s fantastic about today is that having spoken to Suze and caught up on life, the universe and everything (sorry about the house!) it’s helped me to remember just how much I do want to still be part of what’s happening and it’s making me more determined than ever to get a grip on what my body’s doing and learn to play it properly so I can get myself back into sessions, even if it’s only for a couple of hours a week.

So today has also proved to myself that although bad days come along once in a while, but that they will always pass and be replaced by a good day.  I’m lucky in that it’s turned around quickly this time, but even in the blackest of nights it’s important to remember that there’s always a light at the end of the tunnel – and you know you’re going to get there in the end.

Here’s to April.