Archives: Difficulties

If you’re reading this, you probably already know that I’m currently residing in Harefield Hospital following a ruptured cerebral aneurism on Sunday. Here’s the lowdown:

Sunday night, around 8pm, just as I was returning from my dinner break to put the final touches to the project that was due in on Monday, I developed a sudden, severe headache at the top of my neck where the spine meets my skull. Within minutes, it had spread right around my head, which alternated between feeling like someone was drilling into it and my brain trying to explode out of it.

By 8.30 I couldn’t function and was laid on the bed in pain, feeling sick. By 9.30 I’d started vomiting and wouldn’t stop for the next 24 hours.

After failing to keep down one dose of immunosuppression and knowing the morning dose wouldn’t stay down, either, I headed in to Harefield where they rapidly took a CT of my head and found nothing.  To be on the safe side, they then opted for a lumbar puncture (or spinal tap) to see if I had signs of blood in my cerebro-spinal fluid ((NB – blood in the CSF is NOT a good thing)).

Although clear to the naked eye, tests that returned on Tuesday confirmed the presence of blood and, hence, a probably bleed on the brain.

Since Tuesday, I have been improving progressively and now feel right as rain and ready for action. The doctors, however, disagree.

It’s extremely unusual to have any kind of bleed like this at my age ((a tender 28 until next Wednesday)) and the obvious concern is that a small aneurism (pocket of blood) had a small bleed that caused the initial headache, but could fully rupture at any time and cause more life-threatening consequences.

Personally, I’m not worried about that at all. Harefield have been trying for the last 3 days to get me transferred to a specialist neuro unit with little success, which indicates to me that none of the neurosurgeons who have looked at my file are overly concerned.

That said, it’s obviously far too big a gamble to ignore it all together, so my current state of limbo is being sat in Harefield whiling away the hours and days until a bed becomes available for me at either Charing Cross or, more likely, the John Radcliffe Hospital in Oxford ((also my preferred choice)).

Without going into more medical and boring detail, that’s pretty much the skinny for now. No idea if/when I’ll have access to my laptop again when I’m moved, so there may not be updates as regularly as you may like, but the latest news will be posted on my Twitter feed as it comes in.

Finally, many thanks for all the love and support you’ve all shown over the last couple of days since we first made the news public, it means a lot to me and to K as well, who’s obviously had quite the time of it over the last week and is coping with her typical strength and humour.

In precisely 3 weeks’ time the 3 Peaks team will be aboard out transport and heading north to Scotland where we will begin our odyssey in the early hours of Saturday morning, aiming to reach our conclusion at the foot of Snowdon ((having been up and down it, obviously)) 24 hours later.

At times I’ve really struggled with this challenge. Sometimes physically, sometimes mentally, all based on my perception of the views and abilities of others: is it really that tough if thousands of people do it each year?

Here are a few lessons I’ve learned about myself along the way:

1. I have more will-power than I’ve ever thought – apart from anything else, it’s the first time in my life I’ve managed to push myself to go to the gym even on the mornings I’ve really wanted to stay curled up.
2. I have a far higher pain threshold than I thought – each session in the gym I push harder and harder and when it hurts… I keep going. That’s not a phrase I’d have associated with myself before.
3. It wouldn’t work without inspiration – beasting myself on a bike or treadmill (or worse now, the Stairmaster) is only possible by holding the image in my head of all those people I’ve lost and all those I’m afraid of losing. Keeping their plight in mind helps me go harder than ever.
4. Transplant is a truly remarkable thing.
5. I am truly blessed to be able to enjoy all that I do and can do.
6. I will never let this new life go to waste.

Am I confident we’ll get round the 3 Peaks? Sure. Do I know that I’m fit enough to make it? Not really. I’m fitter than I’ve ever been, but I don’t know how that compares to the level of fitness that’s needed to scale Britain’s 3 highest mountains in 24 hours.

All I really know is that I’m going to push myself harder than I’ve ever pushed, drive myself further than I’ve ever been and, most likely, sink myself to new depths of exercise-related pain that ever before.  But you know what? I’m the luckiest guy in the world to be able to do this now and however hard it is, I’ve been through worse.

I must apologise for the lack of updates. If I’m honest, it’s been a rough time lately and with all kinds of work pressures and the added physical trial of training full-bore for the first time in my life, I’ve honestly been questioning whether or not this was going to happen at all.

I’m delighted to announce, however, that a major pharmaceutical company have agreed to fully-fund the 3 Peaks trip and that we’ll definitely be headed north to Scotland on Friday 3rd June to begin 24 hours of mountain-climbing, mountain descents and driving in between.

I was recently featured in another article online to promote not just the trip but the amazing support the guys at Topnotch Health Clubs have given me, including invaluable training advice and nutrition tips.

Really, though, there’s only one thing that stands out today, with 7 weeks to go. Today in the gym I ran, comfortably, for the first time in my life.

After a 15 minute session walking at speed on an incline on the treadmill, I spent the final two minutes jogging on the flat and for the first time ever – absolutely literally – I didn’t have to stop from feeling out of breath, sore in the legs or with chest pains ((not heart-attack chest pains, but I used to get a lot of pain across my scar when I tried to run)).

If nothing else, I’ve proved to myself and my donor that these new lungs are being used for the very best they can. I’ve never been fitter, never felt better and never been able to take so much on my plate as I have at the moment.

I cannot describe how amazing and brilliant this feels. And I cannot express my gratitude to my donor and their family for giving me the chance to feel like this. If you haven’t already, show your support for me, for the trek and for organ donation by signing-up and/or reTweeting/sharing the dedicated sign-up link from NHSBT, http://bit.ly/oli3peaks

The most common question I get when talking about the 3 Peaks is “Why?”.

I have two answers, both of which are exemplified in things I saw on Twitter today.  Number one (courtesy of the marvellous Sheri Candler):

Number two is this series of Tweets from a very close friend:

Just had call number 5 but no good for me. Gutted.

@Tor87

Feeling awful but thank you for keeping my spirits up, so many lovely friends. Please remember the amazing donor and their family today. x

@Tor87

God this has hit me hard. In lots of pain, breathing awful, body wont work. You cannot imagine.

@Tor87

Not only has Tor had to suffer yet another false alarm, but even while she’s hurting, struggling to breathe and exhausted from over 5 hours of travelling, she’s thinking of others.

And when she says, “You cannot imagine,” she absolutely means it. If you haven’t been there, you cannot possibly understand the rollercoaster of emotions that is involved with a false-alarm; being prepared to have your life changed forever before being told it’s not going to happen. And knowing that if it doesn’t happen today, it may never happen at all.

You want to know why I’m subjecting myself to 24 hours of mountain climbing following 3 months of hard training?

Tor is why.

Sadly, despite being up ’til past 2am two nights in a row, my body ((or brain, not sure which)) just isn’t in the mood for sleeping.

I’m an impatient slumberer and if I’m not asleep within about 30 minutes of turning the light out, it just makes me more restless. So, around 3am I get myself up again and head downstairs.

I move the laptop through to the dining room (I feel like working at a desk/table), brew myself a cup of green tea and get down to doing some work on a website I’m prepping at the moment for a new project that’s hopefully launching in the next few weeks. I realise there’s a lot more to be done than I thought and I hit up some WordPress forums for a bit of help with some coding.

After an hour-and-a-bit of that, my brain is a little too numb to focus on any one tsk any more, so I set about backing up all of the various blogs and websites I run ((mostly through the infinitely adaptable WordPress platform, which makes it incredibly easy to backup)), whilst reading some wisdom of Seth Godin, my new guru of choice, and catching up on some news websites I like to stay abreast of, like Mashable and Hollywood Wiretap, the latter of which is a little devoid of news due to the NY break, being trade-based.

I sort out a calendar-syncing issue K and my computers are having and eventually, around 6am, I’m finally too tired to think and I take myself to bed. I get upstairs to discover that K is also still awake, although she has a higher tolerance for just lying in bed when failing to sleep.

We both turn out lights out and try for some sleep, which eventually comes our way.

I wake around 11.30 and drag myself out of bed to eat something and knock back my a.m. dose of meds that are now a little late. I wolf down a bowl of cereal and the tabs, shoot-up a good dose of insulin ((it was a slightly naughty cereal)) and take myself back to bed for more rest.

I snooze lightly but happily for a couple of hours and eventually drag myself out of bed around 2pm, brewing myself a cuppa and hitting the sofa to chill out with some TV in the background while I surf the ‘net and investigate Squidoo, a rather neat-looking idea that is currently intriguing me.

K gets up and I make more tea and we sit and chat with the Strictly edition of Question of Sport on in the background. Tea down, I decide to get off my butt and go for a walk around the village, the old parental mantra of “a little fresh air does you good” ringing in my ears.

On my way round I stop at the Co-op and pick up some grub for dinner and some bits and pieces for lunch tomorrow when K’s girly mates (plus manly men, plus bambinas) are coming over for a post-Christmas catch-up.

I get home and K is busy cleaning, tidying and taking the decorations off the long-dead Christmas tree. I take the tree out, along with a few bags of rubbish and recycling for he outdoor bins, then sort dinner out with our revived George Foreman.

We eat, clear up the hit the sofa to watch ERIC AND ERNIE on Sky+. BBC drama is usually good quality, but even by their standards, this was a doozy of a drama, both of us really liking it.

After the film I go for a bath to chill myself out before sleep ((in the vain hope it might help tonight)) then come back downstairs to grab my evening meds and update the blog while K switches places with me in the tub before we both sack out for sleep.

It’s been a while. In truth, I didn’t want to blog until I could find something positive to put down on these pages. And after a month like January, that’s been very, very hard work.

In addition to the funeral of K’s aunt, who died in late December, this month has seen us lose Jess (as detailed in my previous post) and then, last week, a very close friend’s baby brother, too. It’s been an absolutely heart-wrenching start to the year, especially after 2010 began with such excitement and promise.

I’ve also been hinting and nodding towards a new project which was supposed to be up and running by the end of January, that still hasn’t taken off. However, the reasons for that delay are more exciting than they are dispiriting, but all the more frustrating that I can’t share any details of what’s happening just yet.

One element of the project I can talk about is the attempt – along with my band of merry men – to complete the 3 Peaks Challenge in May this year, the weekend before my 28th birthday. It’s a truly daunting task and the most common reaction I get when I tell people about it is, “Why?”.

So I’ll tell you all now to prevent the mass of comments and emails about it following this post: because I can. Because I’m now able to push myself physically; because I’m able to see what my mental strength can carry me through; because I survived when others didn’t and have been given the perfect opportunity to do the things I want to do; because I can help to show the world just what an amazing difference organ donation can make to someone’s life.

This time three years ago, I was still recovering from Christmas and wondering if I’d see my 25th birthday. From then to now I’ve been able to go the kinds of things I only ever dreamed of and pushing myself physically and mentally through the toughest of challenges is something I’ve always wanted to do. And now I can.

There will be more details on the Challenge itself as well as the wider project as things progress, but today felt like a good day to sit myself down, slap myself round the face, pull myself out of my funk and start moving forward with the gift that is another year of life. Today was my first session at the gym in preparation for the 3 Peaks and it hurt like hell – but the pain of physical endeavour pales in comparison to the pain that my friends and their families have been through in the last month.

This is for everyone who can’t, everyone who wants to and everyone who never will achieve their dreams.

The turn of 2010 was filled with so much promise. Despite the difficulties of 2009, the challenges, the ups and downs, I’ve been incredibly excited about the prospects for the new year. And I still am.

But not all great things can come to pass and, following my previous post, most of you will now be aware that Jess lost her fight late on Tuesday night. After four years on the waiting list (two years longer than anyone ought to survive after being listed), Jess was just too weak to stand up to the rigours of the massive transplant surgery she underwent at the end of December.

A fighter to the last, she was up and about late last week, starting to be moved around by the physio, but she was hit by insurmountable post-transplant complications that her body just couldn’t cope with. She died peacefully with her family by her side.

Tributes have been pouring in on Facebook, Twitter and all over the news pages and TV channels which followed her story so closely. Many, many people have been affected by Jess, some who never even met her. Everyone is now feeling the overwhelming sadness and sense of lost that is infinitely magnified for her family.

Jess death will not be in vain, that much is clear. Despite the grief throughout the community, campaigners who’ve worked with and alongside Jess have already got their heads down pushing forward into new plans, ideas and ways to ensure that no one in the future has to wait until their too ill to receive a transplant.

As for me, the pain of losing two friends in two months is strong, but not as strong as my determination to make the most of the new life I’ve been given. The new project I’ve been working on for the last couple of months is finally coming to fruition and I’m pulling together several strands of things I’ve always wanted to do.

Here’s to a 2010 that serves not only to bring health, joy and happiness to all of us, but also to honour the memory of all those we’ve lost. Take care of yourself and remember to try – hard as it my be – to smile through it.

On Sunday night I went to bed with my phone on and next to my pillow. I was fully expecting a midnight text to tell me that our wonderful fighter Jess had finally lost her battle after dragging herself through one last Christmas.

In the middle of the night – just after midnight, in fact – the phone did indeed buzz. I fumbled around, picked it up and read the message.

“Jess is having her transplant NOW”

I came on here this morning to leave a message about everything that’s happened with Jess in the last few days, but in fact my friend Sarah has beaten me to it and written such a concise and accurate blog detailing the events, emotions and thanks that we have all felt over the last few days that instead of trying to rehash it badly, I’m just going to send you over there to read about it. It’s also worth taking a look at the previous post as well, detailing as it does a family’s first Christmas together thanks to the wonder of organ donation.

Spare a thought as you read this for the family who have suffered the worst of Christmases and keep Jess in your thoughts and prayers. Although she’s finally been given her gift, she’s got a long road ahead of her and there are no guarantees. But one thing we all know is that she wouldn’t be with us now were it not for her call finally coming after more than four years of waiting.

I’ve been struck again by one of my intermittent bouts of insomnia and have – as usual on nights like this – found myself sitting and contemplating all around me.

In particular, I’ve been reading back over this blog entry from the summer and going back through the last few months on my Facebook. I wanted to break into the “real world” and do something that felt like a tribute to my donor. I know now that the decision to go to Liverpool was made in haste and a fog of ambition and clouded judgement.

I can’t regret that decision, though, as it’s left me in a place now that’s so much happier than I was before I left. Being away has made me realise what it is I want to do, but more than that it’s shown me that I have the knowledge, drive and courage to pursue it.

I’m immensely lucky to be surrounded my my wonderful family, my always-supportive friends and, of course, my wonderful K. Since getting back from Liverpool I’ve been happier in my life, my house and my skin that I can remember for a long time.

At the same time, thinking about the future has made me think about all those around the world less lucky than me. I lost my friend Jo just a few short weeks ago and said my final goodbyes last week and knowing that her family face Christmas without her is heart-wrenching. Added to which I’ve got one friend in hospital over Christmas, another friend’s baby brother in intensive care and two more friends facing the very real possibility that this will be their last Christmas if their transplant doesn’t come in time.

This time last year, my brother was fighting in Afghanistan in one of the longest and most protracted operations of our combat there. On Christmas Eve, in an experience I’ve never had before, I was overcome by emotion during the midnight service thinking about him and the dangers he was facing. Without realising, and something I can only attribute to the kind of sibling bond I’ve always derided, I woke on Christmas morning to a phone call from my parents to say that he’d lost one of his closest friends right by his side that night.

In truth, despite our hardships, my family is undoubtedly one of the luckiest and most blessed in the world. I’ve fought and won battles within my own body and been lucky enough to be given a second chance at life. My mum has battled her own illnesses and come through with flying colours and my bro has fought and survived one of what is turning out to be the bloodiest wars in decades for the British Armed Forces.

I’ve been blessed by so much happiness in my life and as Christmas approaches with people living in fear, in hope and in grief, I realise more than ever that now I know where I’m going, it’s time to put the pedal to the metal and get my arse there.

I can’t wait to get started. Here’s hoping that the New Year brings all of us the things we want most in life and, should it fail to and instead present us with more, deeper challenges, may we all have the strength to fight, battle and rail against them and emerge victorious this time next year.

As a wise man once prayed: “God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.”

Merry Christmas to you all, and a Happy, Healthy, New Year.

I’ve been reading a friend’s blog this morning after another friend pointed it out to me. It’s a very interesting take on a couple of articles from the Sunday papers. Read it all here.

The pertinent part of the article for me was this paragraph:

“I use this medium to keep writing and putting my ideas out there, but could it also be a sort of safe haven of vanity, mainly accessed by friends and family, hardly ever questioned or criticized? There’s certainly at least a grain of truth in that.”

It made me reflect on what this blog is all about and why I’m still writing it. I don’t think it’s too strong to say that blogs are almost universally vanity exercises to some extent. While some bloggers are clearly onlt writing to massage their own egos and lead people to compliment them in various nice ways, all bloggers to a greater or lesser extent write because they want people to read it and read about them and their opinions.

When I first started writing SmileThroughIt back in 2006, the blog was intended for me to keep an online diary of the ups and downs [hopefuly] leading up to transplant. I wasn’t writing out of vanity – indeed some of the things I wrote about I didn’t particularly want to tell people – but rather out of the hope that someday someone reading the blog could gain some strength from knowing that someone else had been there before, much in the same way as Emily and I helped each other through experiences we shared on our road and the way Emily guided me through the frightening first weeks post-transplant when the world had changed instantly.

Even that, though, has an element of ego in it. I wanted people to read it and feel affected by it. Ostensibly I wanted to make a difference to someone else’s life, but how vast an ego did I have to think that words on a (virtual) page could really impact and comfort someone to that extent?

More recently, I’ve been blogging less and less as the minutiae of my day-to-day life is now not all that different from other people’s. I contemplated stopping the blog, but some of my readers protested and I kept going, but even then I’ve not blogged in the same open and honest way as I had previously.

Take Liverpool for example. If you read the posts on this blog from September, October and November you would have no inclination at all of the struggle I was having at the time trying to keep myself happy and weighing up the option of whether to return home or not. The ego in me didn’t want people to know I was struggling – I didn’t want people to think I was living an unhappy life as I felt it to be some kind of betrayal of my donor.

Now, this blog is here to serve almost nothing but my vanity, or so it seems. I can keep my writing honed, I can keep my family and friends abreast of what I’m up to and I can occasionally comment on something I want to comment on. But I’m not entirely sure what else it’s for, or whether it’s something I should still be doing.

Any which way you look at it, blogs are vanity. Not always consciously and not always in a negative sense (vanity’s not always a vice), but they are very insular and – as Miss Write points out – they largely go uncriticised.

The next month will be blogging as usual on this site, but in the new year you’ll see a radical overhaul to morph the blog into part of a new project that should be hitting the ‘net in January or February 2010. Keep watching, the ego has landed.