Don’t Live Life On Pause

Mini DV Deck

It’s fair to say I’ve been looking forward to this week for quite a while now.

As I explained on Friday, reaching the 5 year post-transplant mark is a significant step for anyone. It gives a remarkable psychological boost that – for me at least – makes me feel like I may be approaching normal. Ordinary. A regular person.

But, the truth is, I want to be more than normal. I relish abnormality – I want to be as different, as unique and as extraordinary as I have been up to this point. I don’t want to let 5 years pass and think it’s OK to let it rest.

I want to tell the world the impact that my donor has had on my life.

I want to show the world the power of transplantation.

I want to help people understand how important being registered to be an organ donor is and the lives you could save and transform.

I want to be remarkable in the truest meaning of the word.

I want all of these things, but more than anything, I want you to know that extraordinary lives can be lived by all of us every single day. With a deep breath, a smile and a kind word to those around us, we can all have an impact. By signing the Organ Donor Register, we can all leave a legacy. By making sure our loved ones know our wishes, we can all be a part of something bigger.

Tomorrow, on my 5th second birthday, I will be releasing Smile Through It: A Year on the Transplant List on Kindle, closely followed by ePub and physical versions, too. It’s designed to give people an insight into just how hard it is to do nothing but sit and wait.

I want you all to remember that there are too many people in the world with their lives on pause while they wait.

Don’t leave your life on pause; find the play button and let’s make sh*t happen.

Photo: Brian Gurrola on Flickr.

The Joys of Long-Term Planning

The New Seat Exeo

Next week marks 5 years since my transplant. More than that, though, it’s a key landmark on my post-transplant journey. I stop being “a statistic”.

50% of people waiting for a double-lung transplant will receive one. The other 50% will die. I was in the lucky 50%.

25% of people who undergo a double-lung transplant will die within the first 12 months. I was in the lucky 75%.

50% of people who undergo a double-lung transplant will survive to 5 years. I’m in the lucky 50%.

After 5 years, the stats pretty much stop. We all know one day it’ll get you, but to all intents and purposes, everyone has stopped counting.

It’s a big deal.

Planning

Before my transplant, for most of my 25 years, I hadn’t planned beyond the next 12 months. As my transplant got unknowingly closer and closer and I got sicker and sicker, planning shortened to months to weeks to daily ponderings of what I may be physically able to do tomorrow.

I’ve never been able to plan for the long term.

I remember vividly setting the date for our wedding some 18 months in advance and being both incredibly excited and incredibly freaked out by the prospect of planning something that far ahead.

Adapting to planning for the longer-term has been one of the biggest adjustments I’ve had to make in my new life.

New Thinking

Over the last few weeks our little Seat Ibiza has been getting sicker and sicker. It’s at that stage where you’re either going to have to sink a lot of money into it, or get shot of it.

After a service and appraisal of the work that needed to be done, we chose the latter option, which left us on the hunt for a new car.

As we looked around and weighed up our options, we began to think about the life of the 3-year finance plan and what those next 3 years may bring. And the weirdest thing? It didn’t freak me out at all.

It suddenly seems perfectly natural to be sitting here thinking about needing to buy a car that was big enough to fit a large quantity of filmmaking gear in as I develop a plan to increase the amount I’m producing.

It suddenly seems fine to buy a car that’s got great fuel economy to get us good mileage around the country on our mini adventures we’re wont to take.

It suddenly, and strangely, feels fine to know that we can happily start a family without needing to upgrade the car to fit in car seats.

And I cannot tell you how odd it feels that none of that feels odd.

Five Years Gone

Time flies, they tell you, when you’re having fun. And how the last 5 years have flown.

I’ve had my ups and downs, sure, but none of it would have been possible without the generosity of my donor and the courage of their family. You’ll hear more from me on that subject next week, no doubt, but for now suffice it to say that every time I start thinking forward, start planning ahead, start thinking about 3-years deals and 5-year plans, I say a quiet prayer of thanks to my donor for allowing me to even consider thinking about thinking.

What are you planning? Where do you hope you’ll be in 5 years? Let’s look forward together and plan for a better, brighter future.

5 Simple Lessons from 6 Weeks of Change

I’ll admit it, I’ve been neglecting just about every part of my blogging and online world for the last six weeks.

I’m not sharing the same amount of great content I normally share on Twitter, I’m not working to create kick-ass videos on YouTube, I missed an entire week of blogging last week and Saturday was the first time I’d managed to ping an email to my mailing list in over a month.

I’ve been pretty rubbish, all told.

And all in the process of building up to a book launch that should have seen me prepared with a detailed plan and strategy as we raced towards publishing date. Being out of touch with the people who like to read my stuff is pretty spectacularly counter-productive.

But – and here’s the rub – this has been one of the most valuable periods of my life. Why? Let me tell you.

The Lessons

I’ve learned a huge amount about myself and about you, dear readers. Or rather, those people across all platforms who interact with my by reading, talking and sharing my stuff.

Let’s go through them one-by-one.

1. I can’t do it all

Much as I may want to, I can’t commit myself to multiple projects at the same time and expect to get anywhere near decent results.

I used to tackle a million projects and wonder why I never seemed to ship. As a freelancer, I’d work from my study at home and have 4 different windows open on 4 different projects and wonder why nothing was getting done despite how hard I was working on it all.

Now that I’m in the office 9-5(ish) with World Vision, my project focus has had to change. I’ve had to get more organised both at work and at home. At work, I can stay across my workload perfectly well, but juggling multiple projects at home just isn’t happening. I’m too tired and my mind is too taxed during the day to keep that many things going.

Which means I need to pick my projects more carefully and choose where my focus will rest from day-to-day and week-to-week.

2. Prioritising is easy with limited energy

I used to be terrible at prioritising. I’d work all hours to get everything done and end up achieving very little, losing a huge amount of time to procrastination.

Now my job taxes me so much during the day that my energy for my own projects in the evenings and at the weekends is severely limited and I know I can’t tackle everything (see Lesson 1!).

The tiredness and lack of brain-power makes prioritising easy now; if I only have the energy to focus on one or two things (checking and responding to project-based emails and writing this blog post, for example), then that’s what gets focused on – that becomes the priority.

3. I’m capable of more than I thought

Including change.

After my first two weeks at World Vision, I began to fear that I wouldn’t have the energy to do my job properly, let alone keep my own stuff ticking over in the background.

As the weeks have gone on my body has got more and more used to the early mornings and long(er) days and I’ve learned how to manage my energy throughout the day to give me enough left in the tank to cook a healthy meal in the evening (as opposed to junky take-out) and get some of my To Do list done.

It’s been a real adaptation process after almost 5 years of freelance employment to suddenly be an employee again, but the fact that I’ve managed to adapt and grow into my role and my desires to do more outside of work has shown me that you really can have the best of both worlds if you want it.

4. There is too much crap on the internet

I know, it’s pretty obvious, right? But I used to think it was utterly imperative to my personal and professional development that I read all of the 100’s of blogs and articles that people shared on social media or that dropped into my RSS reader.

Without the time to sit and procrastinate while reading through my Google Reader list, I’ve grown to understand that I can cope without reading absolutely everything. I know my job, I know my industry and I know that I’m good at what I do. I don’t need to read a repetitive series of articles about the best use of Twitter for burger companies; I only need to read the things that either truly inform or inspire me.

That’s it.

5. I care less

Not about everything. Not about most things, in fact. Working for an organisation like World Vision means I understand so much more of the poverty and hardship in the world – things that I’m blessed not to be directly affected by, but that I care more deeply about than ever before.

What I care less about is the frivolous things like how people see me, what people thing of the things that I write or share.

I used to be so caught up in whether or not people liked me or cared about what I wrote that I was scared to voice opinions that I thought people might disagree with.

Now I’ve learned that you can’t please all of the people all of the time and there are some people you just can’t please at all. No matter what you do, that won’t change, so all I can do is try to create stuff that I like and work on the basis that some other people might like it, too.

What you can take from this

Frankly, whatever you want.

I’m no sage, no guru, no master of all that is wise.

I’m not here to tell you how to live your life, how to make yourself better or how to do everything you ever wanted. I’m here to tell my story, my way, in my words and if you like it, learn from it and value it, read on. If not then, hey, it’s cool, no worries – go find what you’re looking for elsewhere.

No grudges, no hard-feelings, no ill-will. Just an understanding that I’d rather you didn’t spend what little time we all have reading a blog that doesn’t add value than reading me just for the sake of making me feel better.

I love to learn and I love what I’m doing with my life; I hope you can all say the same.

*****

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Nanowrimo (or Why Motivated Inspiration Is Never Bad)

NaNoWriMo 2008: Day 14

Tomorrow sees the start of National Novel Writing Month or Nanowrimo as it’s more widely known. The name is something of a misnomer as it’s actually a global event, but since Glonowrimo isn’t anywhere near as catchy or nice-sounding a name it seems like a sensible choice to stick with Nano.

A couple of years ago when the even came around I didn’t really understand it. After all, if people want to write a novel, why aren’t they just doing it? And, more to the point, how can anyone hope to write a readable novel in just one month?
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Do Less

LESS

Actors, writers and filmmakers have been saying for years that less is more. Sometimes it doesn’t make any sense – less cake is just less cake, if you ask me – but every now and again it strikes a chord.

How to we go about creating what we want in life when we’re constantly barraged by messages, projects, ideas and things that we really, really want to do/see and people we want to meet/read/talk to?

The trick isn’t in stretching your day to the sleepless limit of its 24 hours. It’s learning to do less to get more.
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Make Better Choices

Decisions

Life is hard.

Every day is filled with choices: what to wear, what to do, what’s top of your To Do list, what’s top of your To Do list according to your boss? Should I boycott Starbucks, should I take a walk, should I eat this chocolate or this apple? Should I drive this way to work, or that way, should I start that new project, should I re-start that old project, what step can I take today towards the tomorrow I want?

We are all but plagued by them.

So how do we make the best choices?
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Why The Source Inspiration Doesn’t Matter

I came across this blog post from everyday bright over the weekend and, the more I thought about it, the more I started to disagree.

Its hypothesis is that the kind of inspirational video like the viral hit How Bad Do You Want It sends out the wrong messages and, far from inspiring, can actually hurt us.

Inspiration

Inspiration is a very personal thing; we are all driven and inspired by different things, different people and our different goals.

Inevitably, what that means is that there is no single source of motivation or inspiration for any of us. I know that I gather my inspiration from a vast number of different places, from family and friends to other people’s stories of success and even odd things like how-to YouTube videos.

What matters most is that whatever inspires us is unique to us. If you’re inspired by staring for hours at a spider’s web glistening with morning dew, that’s just as valid as another’s inspiration drawn from climbing a sheer rock face with no safety gear. Neither would inspire me, but I can see their value.

Damage

The article’s main thrust is that the video in question was made in order to get its protagonist a shot at the NFL after he missed his prime years to be “spotted” playing college football by getting arrested and imprisoned.

It goes on to suggest that because just 0.04% of college football players ever play at a pro level, the video sets up unrealistic expectations.

But I don’t think the video is trying to suggest to anyone that making a YouTube video is the way to get picked up by a professional football team; it’s merely trying to serve as an inspiration to anyone willing to put in the work to be the best they can be.

Take-aways

For me, the video represents inspiration in 3 forms:

  • a great story, told in a compelling way (both video & the audio on it)
  • the dedication shown by the athlete to train himself to the point of NFL-readiness
  • the attitude we can all take to achieving whatever we want to

If anyone watching that video thinks that all it takes to get a pro contract, or achieve any goal we may have set ourselves, is to make a viral YouTube video then firstly, they have no idea how hard it is to go viral amid all the noise and haste of today’s internet and, secondly, they’ll never achieve their goal anyway.

Rather than giving false hope to a generation of wannabe football stars, I think the video serves to inspire and motivate all who watch it by delivering the ultimate truism:

It’s not about how bad you want it, it’s about how hard you’re willing to work to make it happen.

Pretty inspiring for me, at least.