This is going to have to be a relatively short one (I can hear the cheers already), because I don’t have the energy to sit at the computer for long this evening after heading back across to Oxford this afternoon for a progress check.
Last night I reached my lowest ebb that I can remember for a long time – I honestly couldn’t remember a time when I’ve felt worse in my head about how I felt in my body. The advantage of hitting an all-time low, however, is that there’s only one way left to go.
Hopefully, in the next couple of days I’ll be able to sit down and put into words the experience of the last couple of days, but for now surfice it to say that the bottom having been hit (stop giggling at the back), the upward spiral is now unfolding.
At Oxford this afternoon (which is a very comfortable drive in the new Mazda), my lung function was a pretty static 0.75/1.35 – not very impressive, but equally not too concerning, either. The docs made the, frankly not very difficult, decision to keep me on my current IV’s (gent and cef for those who are marking the card) for another week and to get me back in after Easter to see how things are going.
I had more Gent levels done today, which is a fairly easy process of 2 blood draws spaced an hour apart to get a pre-dose and post-dose peak and trough level for the drug in my blood stream. Gent can have some pretty dodgy medium- and long-term side effects if given in too higher doses, so it’s important to make sure levels are checked regularly.
The next 24-48 hours is going to be taken up with almost total rest, as I’m hoping to head to London on Wednesday to fulfill a prior commitment which means a lot to me and I really don’t want to miss. Following which will be another 48 hours enforced bed-rest on Thursday and Friday, for which I’ve already cleared my diary.
Fingers crossed everything has now turned the corner and is on the up. Perhaps sometime soon my life might return to normal – or at least I’ll get used to whatever my new version of normal is.
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- Nope, we got nada!