Speechless is completely how I feel at the moment. You are all the most amazing bunch of people and the messages you’ve sent Oli have been so wonderful and heart-warming. These messages are so important for encouraging him and letting him know just how many people are sending love and prayers his way.
Today has been another fantastic day. Oli has been introduced to the Little Blue Book (he’s assured me the little black book was thrown away a long time ago). The LBB holds all the dosage detail of his medications which allows him to be in charge of what he is due and when. This is a very important step for him as it is part of a checklist of things that he needs to be able to do before he is allowed home. As a CF patient, Oli has been used to self-medicating for years, however, this is a whole new area for him. Oli has to learn about the drugs he takes and needs to remember to take them at the right times and in the right dosages. It won’t take him long as he is used to taking regular medication but the list of drugs is HUGE so he’ll need to be a memory man for a while until it becomes second nature.
Another awesome step forward came within the Doctor’s orders, Oli has been told to go out for a pub lunch on Saturday! Even as I write I am grinning stupidly from ear to ear! It’s so odd to think how quick these things are moving. It has been three weeks since the transplant and in so many ways it feels like longer as we’ve been through massive highs and despairing lows. It’s so amazing to think that this gift has changed our lives so quickly and so wonderfully. Oli is doing so well and is making great progress, almost hourly it seems! If you haven’t already done so, please consider signing on to the organ donor register at www.uktransplant.org.uk. If you have signed up, please talk to at least one person tomorrow about Oli’s miracle, Emily’s miracle (www.pinkandsmiley.blogspot.com), Peter’s miracle (http://waitingforthecall.blogspot.com) , James’ miracle (www.ox28.com) and the other miracles that are waiting to happen. Encourage them to think about signing up, too.
You are amazing, hope you’re enjoying the ride as much as we are x
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