Sorry for the lack of updates, the past few days have been a blur of busy activity for me. Before Oli decided to go and catch himself a few bugs we hit upon an idea of throwing a baby shower for a good friend of ours who is due to give birth while we are on holiday. That baby shower was on Sunday and so prep had to be fitted around any time I wasn’t at hospital (generally late at night), and, as there was no major change I took the decision that the blog could wait a couple of days. Big apologies to anyone who was getting worried.
Today I spent the whole day with Oli. The morning lifted our spirits a little when the doc mentioned that CMV levels had dropped right down and CRP levels were also lower. The afternoon sunk our spirits again when the doc said that as well as CMV, Oli has tested positive for EBV (Epstein-Barr Virus) and could potentially be in for longer than we had thought. Good news is that EBV and CMV have the same treatment so the result that has just come back from last weeks bloods testing positive could easily have changed already as he has now been on the toxic IVs for almost a week. Bad news is that testing blood for EBV is a lot more complicated than routine blood testing and takes a few days before the results come in – it would be this delay that could hold Oli up in hospital. The length of Oli’s stay is entirely dependent on how the EBV numbers go and that’s not such an easy thing to predict, if he needs more IVs then he’ll have to stay on longer. If the figures are coming down then maybe he can go onto oral antibiotics and come home.
As far as holiday goes, for Oli, he won’t be able to come on this one – needless to say we are pretty hugely gutted. I, on the other hand, will still go but may come back early depending on the blood results and the following treatment course.
The main thing we’re hoping for now is that Oli can be out of hospital for his birthday on 25th May, fingers are very much crossed at this point.
Thanks again for your wonderful messages, Oli receives every one and really appreciates them, keep ’em coming!
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- Nope, we got nada!