It feels like it’s been an age, when in fact it’s only a little shy of 6 weeks since I was last sat here at my desk, my Mac, in my study writing up a summary of my day on the waiting list. What a lot has changed in those six weeks – what a remarkable six weeks it’s been.
I keep having to catch myself from protesting at how long it’s taken me to get back here, or to stop myself from trying to do things that I’m not supposed to do yet because to me it feels like months that I’ve been away and out of the loop. It’s been fantastic to receive all of your messages, cards and comments, but they are about the only things I’ve been collecting from my “life”. I now have 6 weeks of unopened mail to go through (except Christmas cards, which K opened – funny how she avoided the bills…) and an inbox which has just downloaded the 420 mails I’ve received since my transplant and that’s after K had a bit of a clearout not too long ago.
It’s so funny to see myself moving freely, doing things around the house (I’ve been cleaning this evening!) and generally getting on with things in a totally normal and nonchalant manner. Already things are becoming second nature to me and I don’t think twice about them until I’ve done them and I sit with time to reflect, or until someone points out just what I’ve done.
I’ve definitely tired myself out today, with a trip to Harefield this morning for bloods, a good, brisk 10 minute walk along the lakeshore this afternoon and then an hour’s manic unpacking/cleaning when I got home tonight, but it feels wonderful to have heavy eyelids and not heavy lungs.
I must add, for those of you thinking anything was amiss – the cleaning I was doing was only because we swapped our bins over and I had to clean off the old one to be used as our recycling bin as the new one is more hygienic for kitchen waste. K has actually, with the help of our great friend Dazz, completely overhauled the flat and scrubbed it top-to-bottom without missing a single nook or cranny anywhere at all. All traces of my former life have been whisked out – no Neve, no concentrator, no oxygen cylinders – and the place is positively sparkling. I can’t explain properly just how hard they’ve worked to make sure it’s ready and bug-free for me to come back to.
The slight downer on the day today (and it is only very slight) is that my Tac level has gone up to 20 again (they’re aiming for 10, remember), and that’s only after taking 3mg, so goodness knows what my body’s up to. I’ll be off for more bloods in the morning and should get chance to chat to my Tx team about what’s going on and also about the scar pain. The trouble with going to hospital on a Sunday is that it’s only the weekend cover who are on and you can’t guarantee that they’ll be the Tx team (which they weren’t today) so it’s hard to get things sorted. Tomorrow should be a different pot of pike, though, and I’m sure we’ll get somewhere with it all.
My walk this afternoon was great – again an amazing experience to get myself out of breath and feel it was my legs that were going to give up before my chest. In fact, after doing the physio’s exercises yesterday, I couldn’t half feel it in my calves today during my walk. Note to self: don’t forget to stretch!
New Year’s eve tomorrow and I’m looking forward to seeing in 2008 with a sense of optimism and possibility rather than worrying about what’s just around the corner for me. Hope you and yours all have a great one and if I don’t blog tomorrow, catch you next year!